The Mont-Blanc Marathon supports three causes :
- The association “Vaincre les Maladies Lysosomales” – Rare but not alone !
Running for fun and giving to advance medical research.
Because it was clear right from the start that there was strength, VML has chosen to open up to all lysosomal storage diseases, rare and very rare, known and less known. A positive choice as the experience shows that our 53 diseases, although different, confront the parents, patients, doctors and scientists to many common questions and issues. The support synergies, daily support, medical care and scientific approaches have benefited from this joint mobilization and experiences with each other …
In a proactive approach, the VML Association has set three tasks:
Offer help and support to patients and their families
Foster scientific and medical knowledge
Promote the work of VML and help fund programs
Overcoming Lysosomal Diseases is a non-profit association (Law of 1 July 1901), created in 1990 and recognized of public utility by decree of 6 December 2006.